Tuesday, April 26, 2011

How MS made like needles, sorta


Last week, I met a new phlebotomist when I went to get my monthly blood taken. She was very nice and was surprised when I told and showed her the area where it was best to take blood.  I then told her it was nothing against her but I would not look when she inserted the needle.  But, I would be fine afterward. However, my arm disagreed.  No blood would come out until they pulled the needle out. I had to be stuck twice.  Yuck. I just sighed and dealt with it.  Then that night when I gave myself my Copaxone shot for my MS, it bled like no tomorrow.  I just sighed again and dealt with it.  I chuckled and remembered that was not always the case.

When I was a child, drawing blood was an ordeal.  Like most children, needles were to be feared.  Shots were to be avoided if possible and crying was generally the reaction.  I remember when I was ten, I needed blood work and my mom encouraged me to look at the blood that was being drawn.  That was a mistake. When I woke up, the vomit was being wiped off and I was given candy to chew on.  So, drawing blood from then on was a trial.  I had to lie down and not look.  This continued for many years.  I do wonder what the staff thought about all the trouble they had to go through just to get blood.  What I wimp I was.

In high school, I needed vitamin B shots.  My dad, a retired Navy corpsman had this technique which didn’t help any.  He would pinpoint the area with the needle and then lightly toss it like a dart going into a target.  I really hated that, but as he would have my arm in an iron grip, I had nowhere to go. I never looked at the shot or even at my siblings when they got theirs.  I refused to scream but I would whine like I was a wounded animal.  One time, my cat even hissed at him for ‘hurting’ me.  Actually, in retrospect, his technique worked.  It did hurt less.  I think just the idea of being a human dart board was what freaked me out.

Then I was diagnosed with Multiple Sclerosis.  I didn’t know that shots would become part of my daily life; I didn’t know ANYTHING about the disease.  They hooked me up to IVs (I HATE IVs. I always have hated them and I have had them on and off since I was four), and then they told me I would have to give myself shots.  My husband would also be trained.  We learned; sometimes I would cry, but in the end we adapted. Even when I was switched to a daily shot, we did it.  I slowly realized I could handle shots.  Especially when I controlled where they went and it was my responsibility to prepare and dispose of them.  I don’t like them, but they help keep the Monster at bay.  I will continue to give or receive them until a better medicine comes out.  I also realized that they don’t go very deep and most of the time they don’t hurt much.  I was not going to be a squalling infant about something that was helping me so much.

Then I developed cancer.  The dreaded IVs came back, and yes at times, I acted like a baby; but as I lay in bed I started watching them take my blood.  It was fascinating.  I finally understood what my husband was saying.  Watching part of your life source flowing into a test tube was a bit unreal.  Part of me was being taken away, but my body would replace it.  Somewhat slowly, albeit because of the leukemia, but it would replace it.  What a marvelous machine God gave me!  This gave me a courage I realized I wasn’t using. Even when a line in my carotid artery was inserted (although it scared me) I didn’t cry, whine or anything.  It just needed to be done.   
Coping with what needed to be done without complaining had finally been learned.

I have threatened to cry if I need to be stuck more than 3 times, but I also understand that some medications make it difficult to find a vein.  I have also learned that I can pretty much tell a nurse or doctor where I DON’T want an IV. But like Paul; I am learning in whatever situation I’m in to be content, and be an adult.  So MS has taught me to be more tolerant of needles and not be frightened.  I still can’t say I like them, just what they bring to me.

Thursday, April 21, 2011

Wanting the Old, Needing the New


Many people know my husband and I have changed our diet recently. I also tend to stretch before bedtime to loosen the stiff muscles so that I can sleep without massive muscle spasming. My question is- If it's good for me, why do I want not to change, or keep up with the changes?
 
Maybe it is because I like greasy not so hot for me food. I’ve already cut most soda out completely.  There are times when my sinuses are SO packed that a blended root beer float is the only way to go, though. What about those times when both of us feel bad and I’m not cooking because I don’t feel well?  For the most part, though, I like the change in my diet. I just miss the junk sometimes. And doesn’t the Bible say something about trash begets trash? Or something like that? Anyways, my taste buds crave what I don’t often give them anymore.

This is the same with stretching. I know I will feel better and my posture is better when I do it.  I love the fact that I can touch my toes. That make me feel better after all the mean gym teachers who said I didn’t try hard enough.   I’m nearly all leg!! Really! I have the same inseam as my dad and my younger but much taller sister!! It doesn’t feel good after a long day, but if I do it earlier in the day, it won’t loosen my muscles! I’m stuck in I want what I cannot have.

Maybe I need to remember the good things and tell myself to ‘shut up’ when I start going for sugar or skipping the yoga. I can touch my toes; I’m at my ideal weight (after being a size 14 because of water weight). My jeans are so loose I might start using scarves to hold them up because I tear up belts. And those are size 8! I’m cooking again, and how I did miss being able to do that. I even don’t mind the burns from cooking that those of us with MS are so prone to get.

I’ve learned some stuff I like such as keeping my nails kinda short so I don’t cut them while chopping veggies; too much caffeine is bad for MS, and I LOVE not having to use my walker!

Pardon me, I left my water bottle in the car.. :)

Tuesday, April 19, 2011

Good Morning and welcome.

Hello.
I have started this blog to possibly spur the creative juices and learn to accomplish something besides daily living.

I Mean, I should love my life. Goodness knows, I've tried losing it more than once because of health issues. I'm not the healthiest person, living with Multiple Sclerosis, remission from APL Leukemia, and dealing with daily headaches. But, I am walking, cooking, cleaning (some) and doing some editing. I love my husband, family, my dog, the four cats, and try to love others. Above all, I love my Lord and Saviour. Then why do I not feel complete?

Is something that modern society says I must have? Is it the fact that I feel that my mind is in a cloud of confusion even though I am desperately trying to wean off any drugs that might cause that? Is it the fact that the silly computer keeps changing fonts on me while I type? I don't know! Maybe that's the problem. I just don't know. A friend once told me that I'm analytical like a guy. Since when? People tell me I'm depressed, but the meds either make me more cloudy or cut out my emotions! I hate that! I really do.  I also hate that I might exaggerate to make my life more interesting when I'm bored or feel inadequate; probably more that. Why?!  Everyone who knows me knows I'm really very boring and that some interesting things have happened to me. I really am a Navy Brat, I really did help NIS (now NCIS) a few times while living in Japan, I really did almost go to the Air force Academy but either chickened out or God told me no at the last second. God really did tell me that my husband would be in my life, but other than that, I don't know. Maybe I should of named this blog that.  I also told someone I might be the smartest person they would ever meet but neither of us would ever know...


Okay, enough griping for a bit. I will (or plan to) be talking about stuff I like or want to write about. I like cooking and am decent at it. I once thought about a career in it. I love books, whether on my phone or the normal kind (I'm reading 3 right now, I think).  I love animals, speak cat, and am learning dog.  I am neither a conservative or a liberal.  I might also talk about things that have helped my MS or started me toward being a healthier person.  I also welcome feedback because, maybe, through conversation, I can learn to focus my mind and gain me back. because I'm not sure where Claire went..